Page 2 of 2

Re: Yikes! Dietary restrictions....

PostPosted: Thu Feb 14, 2013 12:28 pm
by Mark Lipton
Mike Filigenzi wrote:Mark - Interesting that you brought the issue up regarding fresh vegetables. The dietary guidelines I was given indicate that these are fine as long as they're "well washed". I had pretty much decided I wasn't going to rely on that. Greens in salads will be off my list for a while, whether they're well washed or not. My greens will be in the form of chard, kale, etc., cooked and put in pasta or risotto or something like that. A bout of salmonella poisoning would be a very bad thing for me for the next few months.


Since I know that you're an analytical chemist, Mike, I am sure that you appreciate the difficulties associated with getting rid of any contaminant, let alone one as tenacious as a bacterium. I am afraid that "well washed" would involve soap and hot water and I for one wouldn't view that as a decent way to treat my food :wink: Yeah, those green, leafy veggies cooked and put into soup, pasta, etc. will work well. Stir fries will also be useful, I expect.

Mark Lipton

Re: Yikes! Dietary restrictions....

PostPosted: Thu Feb 14, 2013 9:09 pm
by Bill Spohn
Hmmm - braised shot ribs every day for months - think I could take that (actually, to get back to where you should be, any temporary discomfort at all is well worth it). But what about wine, man?

That would console you if you can drink it.

Re: Yikes! Dietary restrictions....

PostPosted: Thu Feb 14, 2013 9:39 pm
by Mike Filigenzi
Bill Spohn wrote:Hmmm - braised shot ribs every day for months - think I could take that (actually, to get back to where you should be, any temporary discomfort at all is well worth it). But what about wine, man?

That would console you if you can drink it.


The alcohol issue is one that I'm not sure of yet. They're not giving me any while I'm here in the hospital (which I'm sure is just as well). I'm guessing that they won't put any restrictions on it when I get home, but how much I'll want to drink may depend on the constitution of my blood. I will also have to watch out for any lingering taste/smell alterations caused by the process. Those will be temporary but I sure don't want to take any chances on developing negative associations with wine.

Re: Yikes! Dietary restrictions....

PostPosted: Thu Feb 14, 2013 10:09 pm
by Bill Spohn
Agree - take it slowly and if it agrees with you probably better to limit it, but a single glass a day is still something to look forward to!

Re: Yikes! Dietary restrictions....

PostPosted: Thu Feb 14, 2013 10:15 pm
by Mike Filigenzi
Bill Spohn wrote:Agree - take it slowly and if it agrees with you probably better to limit it, but a single glass a day is still something to look forward to!


Absolutely! That first glass should taste pretty damn good.

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 9:26 am
by David M. Bueker
As mentioned in your other thread - best wishes for a successful treatment! Braised beef and braised pork seem like the best way to go in terms of meats. Some of those southern style long cooked chicken dishes where the meat just falls off of the bone might work as well.

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 11:33 am
by Ryan M
Having just lost an uncle to colon cancer a few weeks ago, I have the greatest sympathy for you Mike, and I'm very happy for you that if it can't be beaten, it can at least be lived with. And just think how wonderful a properly cooked steak is going to be when you get past this!

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 1:26 pm
by Carrie L.
Okay, now I'm up to speed. Mike, like the others, I feel like I have really gotten to know you through your thoughtful posts over many years. You will be in my thoughts throughout this journey and I'm glad you will be keeping us in the loop on your progress and "dining" options. You have a great outlook on the whole thing and for that I applaud you. You have crates full of foodies and winos in your corner. :wink:

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 2:49 pm
by Brian Gilp
If you have not ordered from Rancho Gordo http://ranchogordo.com/ before now is the time. The beans are top notch and work well with long braised beef. Works great together in a crock pot, easy as can be.

Lots of goods vegetarian recipes out there. Considering the meat and dairy restrictions, sounds like a good time to explore them if you haven't already. I was shocked as to how quickly the meat cravings went away when I went meatless. After the first month, i never missed meat and I remained meatless for over a decade. Cheese on the other hand was something I could never fully remove from my diet, so good luck and at least you can have some cheese.

Good luck.

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 3:00 pm
by Jenise
David M. Bueker wrote:As mentioned in your other thread - best wishes for a successful treatment! Braised beef and braised pork seem like the best way to go in terms of meats. Some of those southern style long cooked chicken dishes where the meat just falls off of the bone might work as well.


Agreed! I, for one, wouldn't be totally unhappy if I had to eat chicken and noodles (or dumplings) every day for the rest of my life.

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 3:08 pm
by Mike Filigenzi
Now that you mention it, the coq au vin we had a couple of weeks ago would fit right in. And I know just what you mean about chicken and dumplings, Jenise.

Re: Yikes! Dietary restrictions....

PostPosted: Fri Feb 15, 2013 8:35 pm
by Lou Kessler
Jeez Mike, I hope you regain all your health in record breaking time. You're being much cooler about your situation than I think I would be if in your place. Hope you're allowed a little wine to mitigate your diet each day.

Re: Yikes! Dietary restrictions....

PostPosted: Sat Feb 16, 2013 4:02 pm
by David M. Bueker
Mike,

Another dish that came to mind is chicken gumbo. Long cooked, well done, fall off the bone meat.

Re: Yikes! Dietary restrictions....

PostPosted: Sat Feb 16, 2013 6:33 pm
by Mike Filigenzi
David M. Bueker wrote:Mike,

Another dish that came to mind is chicken gumbo. Long cooked, well done, fall off the bone meat.


Great idea - and a very hearty one at that.

Lou - No wine for me. Even more discouraging, I hear that many people can't stand the flavor of wine at all for the first couple of months after this treatment!!! Now THAT'S scary!

Re: Yikes! Dietary restrictions....

PostPosted: Sat Feb 16, 2013 8:42 pm
by Lou Kessler
Mike, my wife who is a registered dietitian thought of some foods that probably will be permitted: Stews of many types, meat loaf Jenises but substitute allowed cheese, pastas, fish stews,Cioppino, most forms of cassoulet ,short ribs. osso bucco pork and veal, lamb shanks. She says think of winter comfort foods. She hasn't worked in a hospital for many years, taught nutrition etc at a college in So. Ca, As she thinks and researchs a little I'll add on for her. Ok Mike will stay in touch if anything new.

Re: Yikes! Dietary restrictions....

PostPosted: Sat Feb 16, 2013 9:49 pm
by Mike Filigenzi
Lou Kessler wrote:Mike, my wife who is a registered dietitian thought of some foods that probably will be permitted: Stews of many types, meat loaf Jenises but substitute allowed cheese, pastas, fish stews,Cioppino, most forms of cassoulet ,short ribs. osso bucco pork and veal, lamb shanks. She says think of winter comfort foods. She hasn't worked in a hospital for many years, taught nutrition etc at a college in So. Ca, As she thinks and researchs a little I'll add on for her. Ok Mike will stay in touch if anything new.


Wow, that's great, Lou! Thanks so much (and pass my thanks along to your wife).

Re: Yikes! Dietary restrictions....

PostPosted: Sun Feb 17, 2013 7:29 am
by Fredrik L
Hi Mike!
My dad went through this treatment six or seven years ago, and yes, he is still alive and kicking. Did he avoid slized cheese from the deli? No he did not. Did he order his meat well done? No he did not. Did he suffer temporary loss of taste and smell? Yes, a little. He stopped having coffee when in hospital, because it did not taste good, (hospital coffee never does, but that is another issue...), but that was about it. Your dietician is taking himself (or, more probable, herself) a little too seriously: "What I say is just as important as what the oncologist says!". (Our patients do not see a dietician at all...) Does one today in any way notice that my father is still receiving check-ups from time to time and is still suffering from this cancer? No, one does not.

If the treatment leaves something to be desired you might want to ask your doctor about other options, e g natural killer cells, levalidomid or allogeneic transplant.

You will come through this, Mike. Many people already have! Feel free to mail me if you have any questions!

Greetings from Sweden / Fredrik L

PS. Thanks Jenise, for making me aware of this post!

Re: Yikes! Dietary restrictions....

PostPosted: Sun Feb 17, 2013 3:36 pm
by Mike Filigenzi
Thanks so much, Fredrik! I'm glad to hear this worked out well for your father. From the way things have gone for me so far, I should also do pretty well out of it.

Really glad to hear your dad managed well without having to give up so much good food. I'll keep that in mind.